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Doctors Said He Would Not Reach 13. The Belgian Creator With Progeria Lived to 28. — episode cover art
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Doctors Said He Would Not Reach 13. The Belgian Creator With Progeria Lived to 28.

About this story

Doctors Said He Would Not Reach 13. The Belgian Creator With Progeria Lived to 28. HSK 5-6 Chinese listening practice.

This is an HSK 5-6 Chinese listening episode that runs about 3 minutes. The full Mandarin script is shown with tap-for-pinyin and a line-by-line English translation, so you can listen and read at once — comprehensible input in the sense of Stephen Krashen's i+1 theory. It teaches 15 key vocabulary words such as 罕见、加速、确诊 and walks through 3 grammar patterns, each explained in English with examples. The same news story is retold at 4 difficulty levels — use the level selector above to find the version that is challenging but still understandable for you.

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原文

Read the complete story in Chinese. Reveal pinyin and English only when you need them.

先把这个放在面前
希尔·比利地区网上一个频道自己日常
的是早衰一种极其罕见遗传
名字已经说清楚身体衰老大幅加速
这种病的孩子出生看不出异常通常前后老化开始显现
同龄个子他的身体一个方向
今天为止早衰仍然没有治愈办法
医学统计预期寿命大约十五岁上下
希尔很小时候
医生家里一个具体说法大概只能活到十二岁
十二岁
注意医生的是十二统计十五
一个中学孩子一生长度已经一句完了
这个数字后来没有兑现
可是希尔十二岁
十八
十五岁
最后一直走到二十八岁
全世界仍然在世早衰患者他是年纪最大几个之一
医生十二自己走到十八
那句话出来整整十六
那么十六拿来什么
那个频道几乎天天更新就是很多
值得注意的是拍的内容并不他的
的是今天吃了什么今天去了哪里今天来看今天外面天气怎么
就是普通不能普通一天然后一天
很多观众跟着看了很多下来其实就是一个人的日子
没有镜头对准自己身体也没有每天报告自己多少时间
记录一天过的
本周比利公共电视发出他的讣告
二十八岁
最后一件容易误解
医生那个数字大量病例出来统计结果针对任何一个具体
描述一群人不是你会走到哪里
概率描述的是一片分布不是个人命令
一个背后既有走得也有走得
希尔站在一头
希尔没有那个数字争论也没有嘴上
只是每天起床一天记录下来然后一天
这样重复十六
换个说法那句判断划了一条线他在线走了十六而且的是普通十六起床出门吃饭开机睡觉
你想一想有人一个数字告诉只能这里为止
那句话到底是一个结论还是仅仅一个概率
English transcript reference

First, put this man in front of you.

His name was Michiel Vandeweert. He was Belgian, from Flanders, and he ran a channel online where he filmed his ordinary days.

What he had was progeria, an extremely rare genetic disorder.

The name already tells you the illness: the body’s ageing is drastically accelerated.

Children with it look unremarkable at birth; the ageing usually begins to show around the age of two.

Children his age were getting taller; his body was heading the other way.

To this day, progeria still has no cure.

The life expectancy medical statistics give is somewhere around fifteen.

Michiel was diagnosed very young.

A doctor examined him and gave the family something more specific: he would probably only live to twelve.

Twelve.

Note that the doctor said twelve — shorter still than the statistical fifteen.

A child not yet finished with school, and the length of his entire life had already been settled in a sentence.

That number did not come true.

But Michiel passed twelve, and he was still here.

Eighteen, still here.

Twenty-five, also still here.

In the end, he walked all the way to twenty-eight.

Among all the people in the world still living with progeria, he was one of the oldest.

The doctor said twelve. He walked himself to twenty-eight.

More than that sentence allowed him: a full sixteen years.

So what did he do with those sixteen years?

He ran that channel, updating almost daily, and kept it up for years.

It is worth noting that what he filmed was not his illness.

He filmed what he ate that day, where he went, who came to see him, what the weather was doing outside.

Just a day about as ordinary as a day can be, and then another one.

A lot of viewers followed him for years, and what they were watching was simply one person’s days.

He did not point the camera at his own body, and he did not file a daily report on how much time he had left.

What he recorded was what he had done that day.

This week, Belgium’s public broadcaster ran his obituary.

Twenty-eight.

One last thing, and it is the part people get wrong.

The number the doctor gave is a statistical result worked out from a large number of cases; it is not aimed at any one particular person.

What it describes is a median across a group — not where you will get to.

A probability describes a spread, not an order issued to somebody.

Behind the same median there are people who go a shorter way and people who go a longer one.

And Michiel stood at the longer end.

Michiel never argued with that number, and he did not carry it around on his lips.

He simply got up every day, recorded that day, and then lived another one.

He repeated that for sixteen years.

To put it another way: that judgement drew him a line, and he went on walking for sixteen years past it — sixteen extremely ordinary years of getting up, going out, eating, switching the camera on, finishing the take, going to bed.

Think about it: when someone uses a number to tell you this is as far as you go.

Is that sentence a conclusion, or is it merely a probability?

Listen again

Try it without the transcript and notice what sounds clearer.

What vocabulary does this episode teach?

词汇
hǎnjiànrare

一种极其罕见的遗传病 = an extremely rare genetic disorder.

jiāsùto accelerate

身体的衰老,被大幅加速 = the body’s ageing is drastically accelerated.

quèzhěnto be diagnosed

米希尔很小的时候,就确诊了 = Michiel was diagnosed very young.

duìxiànto come true, to be honoured

这个数字,后来没有兑现 = that number did not come true.

zhōngwèishùmedian

一群人的中位数 = a median across a group.

fēnbùdistribution

概率描述的是一片分布 = a probability describes a spread.

wùjiěto misunderstand

一件很容易被误解的事 = something people easily get wrong.

jìlùto record

把这一天记录下来 = recorded that day.

zǎoshuāizhèngprogeria

他得的是早衰症 = what he had was progeria.

shuāilǎoageing

身体的衰老,被大幅加速 = the body’s ageing is accelerated.

zhìyùto cure

仍然没有治愈的办法 = there is still no cure.

yùqī shòumìnglife expectancy

医学统计给出的预期寿命 = the life expectancy medical statistics give.

fùgàoobituary

发出了他的讣告 = ran his obituary.

gàilǜprobability

仅仅是一个概率 = merely a probability.

tǒngjìstatistics

从大量病例里算出来的统计结果 = a statistical result from a large number of cases.

What grammar patterns appear in this episode?

语法

仍然

"still, even now". Marks a state that has not changed despite time.

到今天为止,早衰症,仍然没有治愈的办法。

换个说法:……

"to put it another way". Restates an abstract point in concrete terms.

换个说法:那句判断给他划了一条线。

仅仅

"merely, only". Downgrades something that sounded absolute.

还是仅仅是一个概率?

Proper Nouns

专有名词
米希尔·范德维尔特Mǐxī’ěr Fàndéwéi’ěrtèMichiel Vandeweert比利时BǐlìshíBelgium弗拉芒FúlāmángFlanders / Flemish

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