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Progeria Blogger Michiel Lives to 28 — episode cover art
3:16

早衰症比利时博主米希尔,用28年生命,推翻了医生"活不过12岁"的预言。

Progeria Blogger Michiel Lives to 28

About this story

Progeria Blogger Michiel Lives to 28. HSK 5-6 Chinese listening practice.

This is an HSK 5-6 Chinese listening episode that runs about 3 minutes. The full Mandarin script is shown with tap-for-pinyin and a line-by-line English translation, so you can listen and read at once — comprehensible input in the sense of Stephen Krashen's i+1 theory. It teaches 15 key vocabulary words such as 罕见、加速、确诊 and walks through 3 grammar patterns, each explained in English with examples. The same news story is retold at 4 difficulty levels — use the level selector above to find the version that is challenging but still understandable for you.

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原文

Read the complete story in Chinese. Reveal pinyin and English only when you need them.

先把这个人放在你面前。
他叫米希尔·范德维尔特,比利时人,弗拉芒地区的,在网上开了一个频道,拍自己的日常。
他得的是早衰症,一种极其罕见的遗传病。
名字已经把病说清楚了:身体的衰老,被大幅加速。
这种病的孩子出生时看不出异常,通常两岁前后,老化才开始显现。
同龄人在长个子,他的身体,在往另一个方向走。
到今天为止,早衰症,仍然没有治愈的办法。
医学统计给出的预期寿命,大约在十五岁上下。
米希尔很小的时候,就确诊了。
医生看过他,给家里一个更具体的说法:他大概只能活到十二岁。
十二岁。
请注意,医生给的是十二,比统计上的十五还要短。
一个还没上完中学的孩子,一生的长度,就已经被一句话算完了。
这个数字,后来没有兑现。
可是,米希尔过了十二岁,还在。
十八岁,还在。
二十五岁,也还在。
最后,他一直,走到了二十八岁。
在全世界仍然在世的早衰症患者里,他是年纪最大的几个之一。
医生说十二,他自己走到了二十八。
比那句话多出来的,整整是十六年。
那么,这十六年,他拿来做什么了?
他开了那个频道,几乎天天更新,一更就是很多年。
值得注意的是,他拍的内容并不是他的病。
他拍的是今天吃了什么、今天去了哪里、今天谁来看他、今天外面天气怎么样。
就是普通得不能再普通的一天,然后是又一天。
很多观众跟着他看了很多年,看下来的其实就是一个人的日子。
他没有把镜头对准自己的身体,也没有每天报告自己还剩多少时间。
他记录的,是那一天他做过的事。
本周,比利时的公共电视台,发出了他的讣告。
二十八岁。
最后,说一件很容易被误解的事。
医生给的那个数字,是从大量病例里算出来的统计结果,它不针对任何一个具体的人。
它描述的,是一群人的中位数,不是你会走到哪里。
概率描述的是一片分布,不是发给某个人的命令。
同一个中位数背后,既有走得更短的人,也有走得更长的人。
而米希尔,就站在更长的那一头。
米希尔没有和那个数字争论过,也没有把它挂在嘴上。
他只是每天起床,把这一天记录下来,然后,再活一天。
这样重复了十六年。
换个说法:那句判断给他划了一条线,他在线外又走了十六年,而且走的是很普通的十六年——起床、出门、吃饭、开机、拍完、睡觉。
你想一想:当有人用一个数字告诉你,你只能到这里为止。
那句话到底是一个结论,还是仅仅是一个概率?
English transcript reference

First, put this man in front of you.

His name was Michiel Vandeweert. He was Belgian, from Flanders, and he ran a channel online where he filmed his ordinary days.

What he had was progeria, an extremely rare genetic disorder.

The name already tells you the illness: the body’s ageing is drastically accelerated.

Children with it look unremarkable at birth; the ageing usually begins to show around the age of two.

Children his age were getting taller; his body was heading the other way.

To this day, progeria still has no cure.

The life expectancy medical statistics give is somewhere around fifteen.

Michiel was diagnosed very young.

A doctor examined him and gave the family something more specific: he would probably only live to twelve.

Twelve.

Note that the doctor said twelve — shorter still than the statistical fifteen.

A child not yet finished with school, and the length of his entire life had already been settled in a sentence.

That number did not come true.

But Michiel passed twelve, and he was still here.

Eighteen, still here.

Twenty-five, also still here.

In the end, he walked all the way to twenty-eight.

Among all the people in the world still living with progeria, he was one of the oldest.

The doctor said twelve. He walked himself to twenty-eight.

More than that sentence allowed him: a full sixteen years.

So what did he do with those sixteen years?

He ran that channel, updating almost daily, and kept it up for years.

It is worth noting that what he filmed was not his illness.

He filmed what he ate that day, where he went, who came to see him, what the weather was doing outside.

Just a day about as ordinary as a day can be, and then another one.

A lot of viewers followed him for years, and what they were watching was simply one person’s days.

He did not point the camera at his own body, and he did not file a daily report on how much time he had left.

What he recorded was what he had done that day.

This week, Belgium’s public broadcaster ran his obituary.

Twenty-eight.

One last thing, and it is the part people get wrong.

The number the doctor gave is a statistical result worked out from a large number of cases; it is not aimed at any one particular person.

What it describes is a median across a group — not where you will get to.

A probability describes a spread, not an order issued to somebody.

Behind the same median there are people who go a shorter way and people who go a longer one.

And Michiel stood at the longer end.

Michiel never argued with that number, and he did not carry it around on his lips.

He simply got up every day, recorded that day, and then lived another one.

He repeated that for sixteen years.

To put it another way: that judgement drew him a line, and he went on walking for sixteen years past it — sixteen extremely ordinary years of getting up, going out, eating, switching the camera on, finishing the take, going to bed.

Think about it: when someone uses a number to tell you this is as far as you go.

Is that sentence a conclusion, or is it merely a probability?

Listen again

Try it without the transcript and notice what sounds clearer.

What vocabulary does this episode teach?

词汇
hǎnjiànrare

一种极其罕见的遗传病 = an extremely rare genetic disorder.

jiāsùto accelerate

身体的衰老,被大幅加速 = the body’s ageing is drastically accelerated.

quèzhěnto be diagnosed

米希尔很小的时候,就确诊了 = Michiel was diagnosed very young.

duìxiànto come true, to be honoured

这个数字,后来没有兑现 = that number did not come true.

zhōngwèishùmedian

一群人的中位数 = a median across a group.

fēnbùdistribution

概率描述的是一片分布 = a probability describes a spread.

wùjiěto misunderstand

一件很容易被误解的事 = something people easily get wrong.

jìlùto record

把这一天记录下来 = recorded that day.

zǎoshuāizhèngprogeria

他得的是早衰症 = what he had was progeria.

shuāilǎoageing

身体的衰老,被大幅加速 = the body’s ageing is accelerated.

zhìyùto cure

仍然没有治愈的办法 = there is still no cure.

yùqī shòumìnglife expectancy

医学统计给出的预期寿命 = the life expectancy medical statistics give.

fùgàoobituary

发出了他的讣告 = ran his obituary.

gàilǜprobability

仅仅是一个概率 = merely a probability.

tǒngjìstatistics

从大量病例里算出来的统计结果 = a statistical result from a large number of cases.

What grammar patterns appear in this episode?

语法

仍然

"still, even now". Marks a state that has not changed despite time.

到今天为止,早衰症,仍然没有治愈的办法。

换个说法:……

"to put it another way". Restates an abstract point in concrete terms.

换个说法:那句判断给他划了一条线。

仅仅

"merely, only". Downgrades something that sounded absolute.

还是仅仅是一个概率?

Proper Nouns

专有名词
米希尔·范德维尔特Mǐxī’ěr Fàndéwéi’ěrtèMichiel Vandeweert比利时BǐlìshíBelgium弗拉芒FúlāmángFlanders / Flemish

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